Rix Wiki pilot scheme
The Local NHS (Clinical Commissioning Group) and Leicester, Leicestershire and Rutland (LLR) councils are working together on a 12 month pilot study.
The pilot study is looking at the use of Rix Wiki’s with children and young people aged 0-25 years, and their families/carers in one of the following groups:
- Children and young people who have a diagnosis of autism and/or a learning disability
- Children and young people who receive a personal health budget through continuing care
What is a Rix Wiki?
Rix Wiki’s were created by Rix Research & Media and University of East London. Rix Wiki’s are simple accessible, secure and easy to build personal websites. Rix Wiki’s offer an easy way to communicate and share information using a computer, tablet or smartphone. They are easy to update, secure and password protected. The family (license holder) is in control of who has access to the information on the Wiki and can then invite professionals of their choosing to view the Rix Wiki.
Rix Wiki’s offer a method for children with complex needs to explain some of those complexities in their own way, to record their needs and just do it once.
Rix Wiki’s can capture your voice and they allow you to share your stories, preferences and goals with the key people in your life.
Rix Wiki’s enable you to tell your story once, and consistently, though pictures, videos and text.
How to apply for a Rix Wiki
There are two routes to apply for a license.
- Please contact your lead professional – School , CAMHS, Continuing Care nurse if you meet the following criteria:
• Children and young people who have a diagnosis of Autism and/or a Learning Disability.
• Children and young people who receive a personal health budget through continuing care - You can purchase a license from Rix Wiki directly.
Pilot Scheme
The license received from the Pilot Scheme will be for 12 months. After which you may keep the Rix Wiki and share the contents but not be able to upload new information to it.
If you want you can renew the license yourself directly with Rix Wiki. If you choose not to renew the Rix Wiki, the information and Rix Wiki will be deleted securely (content can be downloaded – for up to 30 days).
How secure are Rix Wiki’s
The Rix Wiki IT team met with NHS IT professionals prior to the NHS agreeing the pilot. The NHS IT team was assured and happy with the level of security the Rix Wiki web team has in place.
Eligibility Criteria
Rix Wiki’s are available for children and young people who are registered with a Leicester, Leicestershire or Rutland GP who have one or a combination of the following diagnosis:-
- Autism
- Learning disabilities
- Complex physical health needs where a personal health budget has been allocated
If you would like to find out more about the pilot scheme or require further information go to https://Wiki.RixWiki.org/elrccg/home/organisational-llr
What if I don’t meet the criteria
If you do not meet the eligibility criteria for the pilot study and would like to purchase a Rix Wiki yourself please go to https://kimsp.co.uk/product/Rix-Wiki-subscription
You may wish to consider grants, such as family fund or personal budgets to support purchase of a license and devices to help use the Wiki .